Idan Muna da Ƙwaƙwalwa kawai: Shiga cikin Gwajin Clinical

Zan iya kashe sa'o'i
Conferrin 'tare da furanni
Consultin 'tare da ruwan sama
Kuma kaina zan zama abin ƙyama '
Yayin da tunanina ya shagaltu da kyankyasar '
Idan ina da kwakwalwa kawai
- "Idan Ina da Kwakwalwa," Wizard na Oz, 1939

Tare da neman afuwa ga marigayi Ray Bolger, mai zurfin ciki, Scarecrow peripatetic Scarecrow a cikin L. Frank Baum's Wizard of Oz, ga mu da ke da cutar Alzheimer - farkon, tsakiyar da ƙarshen matakai - cutar tafiya ce akan bakan gizo. Kawunanmu cike suke da kaya '.

Tun da farko akan kamannin bambaro yana zuwa yana tafiya tare da jujjuyawar sauyawa, kamar yadda synapse ya gaza alamar sa. Sannan, a tsakiyar da matakai na gaba - bayan furuci - baƙar fata yana zuwa kamar dare.

Idan muna da kwakwalwa kawai.

Alzheimer's, wanda ke lalata duk alƙaluma, duk da haka yana farautar baƙar fata, Latinos da mata, cikakken shiru ne na 'yan raguna, yana satar kwakwalwa - da farko a cikin kari kamar yadda ciyayi ke girma - na duk ƙwaƙwalwar ajiya, kai, da ƙuduri.

Ana iya dakatar da Hannibal. Amma zai ɗauki ƙoƙarin gama -gari, motsawa, ƙoƙarin ƙwaƙwalwar masu bincike, masu kulawa, Majalisa, da sauran jama'a gaba ɗaya don kashe aljanin. Yana farawa da ɗaukar sojoji. Duk da haka tsammanin samun nasarar Pyrrhic a farkon. Na san layin gaba sosai. Alzheimer's ya cinye iyalina - kakan mahaifiyata, mahaifiyata, kawun uba, da uba - kuma yanzu yana zuwa bayana. An gano ni a shekara ta 59. Wannan ba cutar kakanka ba ce.

George Vradenburg, wanda ya kafa Gidauniyar Global Alzheimer's Platform (GAP) da UsAgainstAlzheimer's ya ce "Wannan yaƙin da za mu yi nasara ne saboda za mu yi asarar mutane da yawa a hanya." Wani memba na Majalisar Dementia na Duniya, Majalisar kan Harkokin Waje, kuma tsohon babban jami'i a CBS, FOX da AOL/Time Warner, Vradenburg jarumi ne a cikin yaƙi da cutar Alzheimer, kuma kamar yadda yake da ƙarfi.

Vradenburg ya ce, "Bincike zai ba mu wasu haske, amma don haɓaka magunguna na zamani don jinkirta alamun cutar Alzheimer kuma a ƙarshe dakatar da cutar, za mu buƙaci ƙungiyoyin mutane a cikin gwajin asibiti. Mutum na farko da ya warke daga cutar Alzheimer zai kasance a gwajin asibiti.

“Wannan shine farkon farkon fada; yanzu mun yi hulɗa da abokan gaba, wanda ya yi tsere a fagen. Da kyar muka dauki makamanmu, amma mun fara shiga. ”

Don haka, Vradenburg, shugaban Gidauniyar GAP John Dwyer, da Dr. Michael Weiner, babban mai bincike na Rajistar Lafiya ta Brain (brainhealthregistry.org), sun haɗu don haɓaka binciken farko da Harris Poll ya gudanar akan layi don tantance yawan Amurkawa shirye don shiga cikin gwajin asibiti na Alzheimer. Sakamakon, wanda aka saki, hakika abin ƙarfafawa ne, duk da haka, akwai bayyananniyar yanke, synaptic a kwatankwacinsa, tsakanin waɗanda suka tsunduma cikin gwajin cutar Alzheimer na asibiti, da waɗanda ke son yin hakan, ko la'akari da shi.

Gidauniyar GAP tana da wahala a aikin haɗa ɗigogi waɗanda ke nuna ƙimar halartar asibiti har zuwa yau ƙasa da kashi 10, kuma sakamakon zaɓen yana tabbatar da cewa kashi 60 na Amurkawa suna shirye ko za su yi tunanin shiga cikin gwajin asibiti.

Daga cikin sauran mahimman binciken:

• Kashi 11 cikin 100 na Millennials na Amurka sun yi imanin akwai maganin cutar Alzheimer
• Kashi 25 cikin 100 na iyalai na Amurka suna da/suna da danginsu da ke da cutar Alzheimer
• Kashi 20 na Amurkawa sun ce tabbas za su yarda su shiga cikin gwajin asibiti; Kashi 39 cikin dari sun ce za su yi tunanin yin gwaji
• Fiye da uku cikin Amurkawa biyar (62%) sun yi imanin cewa Hillary Clinton za ta yi fiye da Donald Trump don taimakawa a yaƙi da cutar Alzheimer

Vrandenburg yayi magana game da gazawar samar da Amurkawa masu son ƙarin bayani da sauƙi, mafi ƙarancin kayan aikin firgita don shiga zai zama bambanci tsakanin nasara da shan kashi a cikin wannan cutar. A cikin hoton hoto, sama da Amurkawa miliyan biyar ne aka gano suna da cutar Alzheimer, tare da mutuwar rabin miliyan kowace shekara - nesa da ƙimar jikin Baƙin Mutuwar ƙarni na 12. Ana sa ran adadin da aka gano da cutar Alzheimer zai kai miliyan 7.1 a cikin kasa da shekaru 10, kuma zai kai miliyan 135 a duk duniya nan da shekarar 2050. Ƙara yawan adadin, dubunnan miliyoyin masu kulawa waɗanda ke fuskantar lalata ƙalubalen kiwon lafiya da kansu, da sama da dala biliyan 230 a hauhawar farashin kiwon lafiya, ana tsammanin zai tashi zuwa dala tiriliyan 1.1 a cikin shekaru 34 masu zuwa, kuma kuna da hoton kalma kusa da Armageddon.

Wanene zai yi magana?

Idan muna da kwakwalwa kawai.

Vradenburg ya ce, "Ciwon Alzheimer matsala ce mai girman kansa," in ji Alzheimer's shine na shida da ke haifar da mutuwa a Amurka, ita ce kawai irin wannan cuta da ke tashi, kuma ita ce kawai wacce ba ta da magani.

Kuma duk da haka Alzheimer's pales idan aka kwatanta da tallafin ciwon daji a matakin tarayya, bambancin 6-zuwa-1. Tallafin bincike kan cutar kansa ya haura sama da dala biliyan 6 a shekara, yayin da binciken Alzheimer a yau ana tallafawa kusan dala miliyan 900, tare da tsammanin karuwar dala miliyan 300 zuwa 400 a cikin Majalisa don kasafin kuɗi na gaba mai ƙarfafawa-yana ƙarfafawa, amma har yanzu ba a ga alamar ba. don dakatar da cutar da jama'a ke da wahalar fahimta, suna cikin musantawa, ko kuma kawai suna mai da hankali kan tuƙi.

Don ɗaukar cutar Alzheimer lokacin da kuka sadu da wani da ke da cutar, da yawa, a zahiri, da alama suna tsammanin wani abu daidai da yanayin barikin ban-ban-duniya a ainihin Star Wars. Ba ma kusa. Na gani ya fi kama da Michael J. Fox sitcom, “Family Ties.” A cikin Alzheimer's babu tabo daga ayyukan, babu wani babban tasiri daga jiyyar cutar sankara. A kallo, a wasu lokuta, a farkon matakai, ana samun 'yan bayyananun gani ga ido tsirara. Duk da haka, ba za ku iya cire kwakwalwa ba.

Ba na ba da shawara a yau a rage kashi ɗaya cikin ɗari da za a kashe akan bincike kan cutar kansa, cututtukan zuciya, cutar kanjamau, ALS, Autism, ɓacin rai, ko kowane adadin munanan cututtuka. A zahiri, fiye da haka yana buƙatar daidaitawa. Na san tsoron ciwon daji; An gwada ni da shi, haka nan. Ina so kawai Alzheimer ya sami hakkin sa.

Don haka ta yaya za mu ci nasara a gaban Alzheimer? Ta hanyar ɗaukar hoto da sauri daga binciken ƙasa mai ƙarfi na GAP, da yin rijista kyauta a Rajistar Kiwon Lafiya na Brain don ƙarin koyo game da gwajin asibiti. Ba lallai ne a gano ku da cutar Alzheimer ba don yin hakan. An ce a cikin shekaru 25 masu zuwa za a sami mutane iri biyu a duniya: masu cutar Alzheimer da wadanda ke kula da wani mai cutar. Rajistar Lafiya ta Brain (BHR) tana tattara bayanai daga masu sa kai waɗanda suka yi rajista da kammala tambayoyi da gwaje -gwaje na hankali akan gidan yanar gizon ta. BHR na neman rage farashin ɗaukar marasa lafiya don gwajin asibiti ta hanyar gina babban tafkin kan layi na yuwuwar, masu shirye-shiryen gwaji.

Kawai 'yan swipes na keyboard na iya sanya wannan al'umma akan hanya don cin nasara akan Alzheimer's. Idan kuna fuskantar asarar ƙwaƙwalwar ajiya wanda ke rushe rayuwar ku ta yau da kullun, nemi taimako. Yi gwajin.

Kamar yadda Scarecrow ya raira waƙa:

"Ba zan zama kawai nuffin ba"
Kai na cike da stuffin '
Zuciyata duk cike take da zafi
Zan yi rawa in yi murna
Rayuwa za ta zama abin birgewa
Idan ina da kwakwalwa kawai ”

Kuma a, babu wani wuri kamar gida ...

Sabuwar littafin Greg O'Brien, "A kan Pluto: A cikin Zuciyar Alzheimer," ya ci lambar yabo ta Beverly Hills International Book Award don Magunguna, Kyautar Littafin Duniya ta 2015 don Kiwon Lafiya, kuma shine ɗan wasan ƙarshe na Eric Hoffer International Book Award, kazalika a matsayin na ƙarshe don Kyautar Kyauta mafi Kyawu ta Amurka. O'Brien kuma shine batun ɗan gajeren fim ɗin, “Wuri da ake kira Pluto,” wanda mai shirya fim ɗin da ya ci lambar yabo Steve James ya jagoranta, akan layi a Livingwithalz.org. NPR ta "Duk Abubuwan da Aka Yi La'akari da su" suna gudanar da jerin abubuwa game da tafiya ta O'Brien, akan layi akan npr.org/series/389781574/inside-alzheimers, da PBS/NOVA sun bi hanyar Pluto a cikin shirinta na fashewar cutar Alzheimer, "Za a iya Tsayar da Alzheimer. ” O'Brien ya yi aiki a Ƙungiyar Shawarwari ta Ƙungiyar Alzheimer don Farkon farawa Alzheimer's, kuma mai ba da shawara ne na haƙuri don Asusun Cure Alzheimer na Boston da fitaccen Washington, DC na UsAgainstAlzheimer's.